Anonymous: "Hi, I am a 22 year old Female from Minnesota, although I received the vaccine when I was 21.
I received the first dose of the Moderna vaccine on Friday March 5th and felt okay for the majority of that weekend just a little tired and achey. On Sunday the 7th I started feeling really dizzy/unsteady like I was bobbing up and down on a boat, I tried to ignore it until later that night I got out of the shower and had to hold on to the counter because I felt like the floor was going up and down. I was able to make it into bed thinking it would be gone in the morning, but when I woke up the next morning it was still there and it never went away. Still today on July 21st I have it along with a variety of different new symptoms.
Since getting the vaccine I have developed POTS (postural orthostatic tachycardia syndrome). I have had an insane increase in migraines and general headaches, and have been diagnosed with something called Mal de debarquement syndrome which is basically a syndrome in which the brain never fully readapts to being still after movement has stopped and presents as a persistent phantom sensation of bobbing, swaying, rolling, etc.. Mdds is fairly uncommon but since one of the best theories as to the cause of this syndrome is that it is a form of migraine I have seen a couple doctors that believe it was caused by the vaccine and have been put on a migraine medication.
Feeling movement 24/7 and thinking it will never go away has increased my anxiety level substantially and that combined with the rest of my symptoms has made everything much more challenging. However, thankfully I have very supportive parents who have gone out of their way to make sure I’m getting the best care possible. Advocating for myself that something was wrong to the many doctors I saw enabled me to get a quicker diagnosis so my piece of advice to anyone going through any post vaccine symptoms/illnesses is to make sure to do your research and advocate for yourself!!!!
I have also finally found a doctor/clinic that specializes in treating my condition. The Functional Neurology Center in Minnetonka, MN is amazing and I would highly recommend them to anyone suffering from MDDS, PPPD, POTS, migraines, dizziness, vertigo, general headaches, vision issues, etc.."